We were supposed to be going out for lunch today, something we haven’t done for quite a while.  I had booked the wheelchair taxi, and asked the staff to have him dressed and ready in his wheelchair by 11. 30.  And yesterday he told me what he would like to wear so I left the hangers out for staff.

But when I arrived he was still in bed and sound asleep, and I do mean really asleep and not just napping.  After a bit, he woke up but still groggy, and said he didn’t want to go anywhere.  Well I guess when you just wake up you never feel like leaping up and getting out and about, but 20 minutes later it was still the same.  I went to tell the girls not to bother about getting the lifter machine to get him up, to which they cheerfully answered that they would come in and persuade him.  “He needs to go out, it will do him good.”

Well yes, maybe it would “do him good” but he is still his own person and was quite definite that he just wanted me to stay with him and for us not to go anywhere.  So that’s what I did.  Cancelled the taxi.  I mostly sat by the bed and read the paper and did the crossword and he dozed, didn’t want his lunch when it came around.

Fatigue is a huge element of MS.

We’ll probably try again on Saturday.

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  1. Thank you for sharing this. I have a bad habit of sharing our successful outings and too few of just such aborted outings.

    In the care facility era even more so than home care ‘we’ have to be aware of fatigue and let our loved one’s body talk.

    Caregivingly Yours, Patrick